The Challenges and Hopes of Living with a Rare Disease

I’ve recently started writing for https://patientsrising.org/ an organization that fights for patient’s rights to access life-saving treatments.

This is my first article for them which I wrote to follow up on the energy created on Rare Disease Day, titled, The Challenges and Hopes of Living with a Rare Disease .

Enjoy.

 

IMAGE: Google, labelled for reuse

 

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